Pros and Cons of Seeking an Adult Diagnosis - Aspergers/Autism/ASD | Patrons Choice

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Pros and Cons of Seeking an Adult Diagnosis - Aspergers/Autism/ASD | Patrons Choice

Self-diagnosis is common among adults on the Autism Spectrum. While some receive a late aspergers diagnosis, those who discover aspergers for themselves don't always choose to follow up this self-discovery with an official diagnosis. Patreon: Facebook: Twitter: Written Blog: More Videos: ----------------------------------------------- // WELCOME TO ASPERGERS FROM THE INSIDE!! My name is Paul and I discovered I have Aspergers at age 30. If you're new you can check out a playlist of some of my most popular videos here: Yes, I know, I don't look autistic. That's exactly why I started this blog, because if I didn't show you, you would never know. As the name suggests, this channel is devoted to giving you insight into the world of Aspergers. This blog started off being just my story, but I've learned SO MUCH about my own condition from meeting others on the Autism Spectrum that now I make sure to feature their stories as well. I've come a long way in my own personal journey. Now I'm sharing what I've found so you don't have to learn it the hard way too. ----------------------------------------------- // WHAT TO EXPECT FROM THIS BLOG I value your time which means there are NO YOUTUBE ADS on my videos. You can expect me to get to the point with concise useful information. I focus on what is most important and don't shy away from difficult topics. The best way to learn about Autism is to see it in real life ( i.e. via the stories of many, many people on the spectrum). In this channel I endeavour to show you what Autism and Aspergers look like in real people and to also give you some insight as to what's happening on the inside. I upload a new video every weekend with some bonus content thrown in mid-week too. There's always new stuff coming through so be sure to check back and see what you've missed. (Is this where I'm supposed to tell you to hit that subscribe button?) Topics Include: - What is Aspergers/Autism? - Aspie Tips, coping strategies, and advice on common issues - Learning Emotional Intelligence (this is my special interest!) - Autism in real life: stories from special guests Everything I do is and endeavour to go deeper and take you 'behind the scenes' to understand what may, at first glance, seem 'odd'. oh, and I love busting stereotypes and turning preconceptions upsidedown :) ----------------------------------------------- // ABOUT ME I discovered I have aspergers at the age of thrity. It has been my life's mission to understand these funny creatures we call humans. My special interest is a combination of emotional intelligence, psychology, neuroscience, thinking styles, behaviour, and motivation. (I.e. what makes people tick) My background is in engineering and I see the world in systems to be analysed. My passion is for taking the incredibly complex, deciphering the pattern, and explaining it very simply. My philosophy is that blogging is an adventure best shared. ----------------------------------------------- // EMOTIONAL INTELLIGENCE TRAINING I also run autism friendly online emotional intelligence training. So if you like my direct, systematic style, and would like to improve your own emotional intelligence skills, check it out here: ----------------------------------------------- // CONTACT Blogging is an adventure best shared which means I'd love to hear from you! Feel free to leave me a comment or send me and email at any time and I'll do my best to respond promptly. Email: aspergersfromtheinside@gmail.com Thanks for reading and I hope you enjoy this channel! I look forward to hearing from you! Peace, ~Paul

Comments to the video: Pros and Cons of Seeking an Adult Diagnosis - Aspergers/Autism/ASD | Patrons Choice

Aunty Ro Knows 4 days ago
But does treatment actually help with social interactions? Do they have a plan of action? Otherwise what's the point in sitting around talking about it?
Jeremiah Prows 7 days ago
I got diagnosed recently by two trained mental health professionals and I'm 31. The biggest blessing to me has been that it has provided answers to why I behaved the way I did all these years.
Ruthanne Kamphuis 13 days ago
I have an apt to find out if i have it i always knew i was differant and never rilly fit in
Ruthanne Kamphuis 13 days ago
Where do I go for online communities for adolts with Autism??
Zoes Dada 14 days ago
In order to recieve any kind of government assistance you'll need a diagnosis from an licensed doctor.
aCELESTIALway 18 days ago
PRO: I'm in college and get more time in exams and other help (e.g. can do a written task instead of a presentation/group task). CON: I'm trying to get a sleep-related problem diagnosed for some time now, or at least help for it, but so far it only gets shoved aside ('not my area, maybe go to X' meaning more waiting for an appointment at the next doctor's office) or put into the autism box. One young doc just heard my diagnosis and basically stopped listening, as if EVERY problem you could possibly have must be because you're autistic, and that's it. No help, no tests, no questions. It's incredibly tiring and made the whole endeavour very emotionally charged, which it didn't need to be.
Iahel Cathartes Aura 20 days ago
Wow this video is major GOLD. And the comments are too. Thank you, Paul. I'll definitely be buying you a few coffees in the new year to offer what tangible appreciation I can for all you do.
Ithaca Comments 1 month ago
I am self diagnosed as an Aspie at age 67. I didn't consider that I might be on the spectrum until my adult daughter questioned if she might be. I read a lot about the characteristics of people on the spectrum and started to see myself over the years and also my daughter's behaviors as Aspie. My daughter is a brilliant 45 yr old that does many things for enjoyment that a 15 yr old would do.like collect action figures and go to the movies frequently. She has a good job and functions independently on her own. Until she was 12 yrs of age, she had what I called temper tantrums but now I see that these episodes were most likely Aspie meltdowns. I am glad to have been enlightened.glad to have this awakening as to why my daughter and I have certain behaviors. Now that I am enlightened, I see people who are most likely Aspie everywhere and I have more compassion for their behaviors.
Beth Hughes 1 month ago
I wasn't diagnosed until I was 17 yrs old so really had a ruff time in school.Doctors knew there was something wrong with me but they weren't sure what it was.
Andy C 2 months ago
I will know for sure in about 3 months. That is when they have promised me the diagnosis. I am in the UK so it was free, but my initial appointment with a doctor was in May 2017.
dreiser91786 2 months ago
There is is too many variables on this topic at this time, many people including psychologists are ignorant.
Sharon Thomas 2 months ago
I'm 52 and self-diagnosed since about 2 years ago when I stumbled upon an article which led to further reading. Since then my daughter has been diagnosed and we're pretty sure that I'm right. The only thing holding me back is money. I'd quite like the validation of a diagnosis just because I'm pretty high functioning but life has been a long hard slog and it's a massive relief to realise that I'm actually awesome and gifted rather than a struggling failure, and none of it was my fault 😁. Be a nice way to spend my last decades, fully assuming my batty, selfish ways and being a superhuman mad old cat woman.
Blue-Eyed Pagan 2 months ago
Like many Wierdo people the term ignorant people who label humans like me have suffered ridicule all of our lives. Ive sought the life of a loner from a very early age to escape school and army bullies which has helped me, but has been torture for my wife whom I adore more than life. Open heart surgery and a benign tumour of the throat just about tells you how screwed up my life has been..🤯 Loser of the top order but at least I can still laugh at myself and think it's nearly over as I'm in my later years🤡 The labels ive been called over the years from Psycho, Cnut, loser, arse lick and many more have destroyed me as a man but more than anything a human being who now loathes people but more than anything I loathe myself for what I am a failed man🤐 My problem to bond with humans has plagued my army career then civilian career which led to both the heart and throat problems. Please seek help if you feel rotten. You are not a punch bag or an object some like to humiliate and destroy. Talk to someone else as you are not alone and as such you can find friends to help and stand with you😊 Good luck🧓
Max Wylde 3 months ago
I find that this isn't worth the trouble, and what's more I think it's detrimental. It's a little like admitting to people that you're a ex-con or a psychopath, when you're neither. It's not that people don't know what Asperger's or High-Functioning Autism is, it's just they do not want to deal with our problems. Understand that the modern human is an idiot who cannot be bothered with real life interfering with his comforts. So, I say, don't get the diagnosis. And be very careful who you disclose your problem to.
James B 3 months ago
I just wrote a long soul stirring comment about how my ados test didn't really seem to match my real life experience, symptoms etc and then whilst trying to edit my long as hell comment an 'unknown error' happened so I refreshed and everything disappeared. fml Seems like an existential symbol of how I really felt about my ados test I took yesterday. Signing off.'secret aspie'.
Iahel Cathartes Aura 20 days ago
Sorry that happened to you. That has happened to me before too. Sometimes, if I can slow myself down, I keep selecting & copying my comment as it grows longer. So unless my device turns off suddenly for some reason, at least most of my words are captured on my buffer. Wish I could read your words & thoughts. Maybe they'll come back to you & I'll see them on another of Paul's videos sometime :)
Aysha Raven 3 months ago
Hey, I just found your channel and you are awesome 🙂
Aspergers from the Inside 3 months ago
thanks!
Stephen P 3 months ago
Is there a list of scenarios where mandatory disclosure is required (based on profession, etc.)?
353 Bandit 3 months ago
I didnt have to worry about self diagnosis. I had plenty of records from my past to confirm an actual diagnosis. Then again im moderate to low functioning so it wasnt that hard to be diagnosed professionally. Unfortunately I had alot of misdiagnosing before I got to the real diagnosis. I am in the lost generation from the 1990s.
Cece Gomez 3 months ago
What do you think? I really think I'm in the spectrum, I suspect I have high functioning Autism, but I'm a girl, I'm almost 24, and I live in an area where there's no access to much mental health care. I was diagnosed as a kid with anxiety disorder and as a preteen with OCD, being living with that and trying to understand mental health I landed upon the Autism community on Youtube, and nothing had never been so relatable to me as all of those experiences and symptoms. I've been thinking of seeking a diagnosis in order to get treatment, because though I'm good at speech, I've been a loner for my whole life, and even more, I haven't left my house properly in the last four years, I go shopping and everything, but I don't hang up with anybody, I basically avoid every social event I get invited too, and I don't have any friends, I just see my Mom and Dad and that's all. But I still strive human connection at times, I just can't get the nerves to go out and talk to people, or even staying in a place where's there's so much social input. For me is just awful. Said that I'm also kind of scared of getting a diagnosis, I know this doesn't changes who I am because I've always been like this, but I've heard about people getting really depressed or having basically a rough time knowing they have a disability and through the accepting phase, and this really bugs me out, because I talked to my Mom about it and finally after much explaining I got her to support me in my seeking of a diagnosis. But I don't want her to regret it if I get depressed after it (and obviously I would not like to be depress). Maybe I'm thinking too much into it, I'll like to hear some opinions.
Selena Nessa Pfeiffer 3 months ago
Oh, a great youtube channel to learning more about Autism is Amythest Schaber (Ask An Autistic) If you haven't discovered her videos yet. That channel helped me learn soo much about myself. I was diagnosed with Autism Spectrum Disorder, unspecified type recently. I am 28 now. Growing up I was diagnosed with PDD-NOS. I also have Generalized Anxiety Disorder, Panic Disorder, learning disabilities and other mental conditions. Since I was very little I always knew I was different, I just didn't know what was wrong with me. Now days I am finally getting answers. It sure can be a struggle getting through life being autistic with sensory issues too. I am sensitive to noise and touch. Touch is the worse for me.
Aspergers from the Inside 3 months ago
my advice to all people who think they might be on the spectrum is to try and meet others who are on the spectrum. that helped me a lot in deciding whether to seek a diagnosis :)
JenicatTheAnomaly 4 months ago
yeah my main problem aside from money is being misdiagnosed as bipolar, being that i'm female there's a good chance that'll happen
jrp335 4 months ago
I live in Mississippi and my therapist basically told me to stop seeking an official diagnosis because my level of impair is too “small” in his eyes because I’m 28 and I’ have been able to compensate for a lot over my life. He never uses Asperger’s or anything related term. He only talks about my different “perception”
TheRikivip 2 months ago
jrp335 find a new therapist
Jessica Kennedy 4 months ago
From what I know about this from personal experience is having a diagnosis of any kind whether it be autism or another mental illness it ruins your credibility. It makes people believe that your no longer able to do things on your own. People have had their children taken away for no other reason than a diagnosis. The person may be 100% capable and already be succeeding in taking care of themselves and their kids but it doesnt matter to everyone else. You will stop hearing you can do anything and instead hear you cant do anything from everyone around you no matter how long you've known them once there is a diagnosis they will use it to control you. It wont even be about what they think is better it will be about control. The people around you who couldnt get you to do what they wanted will now have a reason. They can go to court. They can say this person isnt capable look at this piece of paper and succeed in taking over your life. It is not helpful to have a diagnosis in my experience. They will not allow you to drive a car, work, have any amount of independence. They will decide what appointments you go to and when. They will decide for you that you need therapy and force meds down your throat. They will tell anyone who will listen that your crazy and whatever you tell them is a lie and the reason is your diagnosis. It will make it easier for people to take advantage of you. If someone does something to you that is illegal you can take it to court but it's your word against yours and if they find out about your diagnosis they win before the trial had even started. I dont recommend it if you can live without having a diagnosis.
Mary Hunter 3 months ago
I agree that a diagnosis can be used against you. But I don't think it is very common for people to lose their children or be forcibly put in therapy with medicine just because they have an autism diagnosis. There are benefits to knowing you have autism too. It makes it easier to understand how you function in the world and can give you access to help you wouldn't get otherwise. Anyway, it is something every person has to decide for themselves. Circumstances differ.
Pam Tufnell 4 months ago
I wanted to just know to understand myself better
Pam Tufnell 4 months ago
Five of them no tests and all just said no to everything I said even the advocacy sat there and said nowt
Alex G 4 months ago
26 year old American male here - in August I was diagnosed on the Autism Spectrum. Medicaid covered the costs of everything, at least for me and my situation(young, healthy,single, no children,independent, impoverished) The total process took me from October 2017-August 2018. Started in October with visiting a regular counselor, that snowballed into regular visits and after about 2 months she started talking to me about autism and recommended I consider testing. I did research and immediately felt I had found my tribe for the first time in my life. My counselor helped me find a psychologist to test with, one who specializes in Autism and trains PhD candidates. I got lucky. I had to wait from February until the end of May to start the testing process. I first did the ADOS in May, then in July I had three separate 3 hour appointments that involved interviews, testing activities, and questionnaires. It was a long and tiring process but worth it to me. I am fortunate enough to be poor enough to have Medicaid cover the entire process, I only paid for the gas to get to and from my appointments. I am fortunate enough to live in America!
Cindy Shirts 4 months ago
Thank you, this was very helpful! You laid things out clearly and logically. I'm 57 and I've been weird all my life, now I'm the quirky gramma everyone loves, but life is exhausting. I was diagnosed with ADHD as a child, 2 years ago my granddaughter, who is just like me, was taken in for testing and was diagnosed with Aspergers. That was when a lightbulb went off and I started looking into the possibility I was misdiagnosed. Your video has given me the confidence to get an official diagnosis, it will not only help me but my granddaughter as well. Thank you again.
Stevie G 5 months ago
who the fuck would say its a complete waste of time lol
Ernie Pianezza 5 months ago
Dude! I gotta say.. Yr HOT!! I have a wonderful friend of almost 40 years who's an Aspie. I find your videos very informative. Thank you so much! Peace :-)
Stet709 5 months ago
I just got a psychoeducational assessment done a couple weeks ago (a ~6 hour session with 1/2 hour break) and am just waiting for a followup appointment. 25 and likely been an aspie all my life (which would explain things)
dAnne Corrigan 5 months ago
I have got pdd nos
DrumWild 5 months ago
I got an official diagnosis of Asperger's at the end of 2017, just before my 53rd birthday. It has brought about added frustration, and appears to have been rather pointless. I went to the therapist after having been scammed out of a ton of money by a friend on Facebook who claimed to have cancer. I got scammed in front of everyone I had ever known. Lost a TON of money, but that was the easy part. I also lost my reputation, what few contacts I had, and more. My goal was to figure out why I was so gullible, why I attract abusive people, why I can't make friends, why I have trouble interviewing for jobs, why I have trouble keeping work, and more, and then take steps to ensure that these issues NEVER happen again. There was a series of tests, and I got the diagnosis. Fine, I want a CURE for it. The therapist, adding insult to injury, tells me there NO cure for it, and besides, why would you want to cure it? It's a gift! Why would I want to cure it? It was as if he was NOT listening in all of our therapy sessions. I want to CURE it because it has gotten in the way of my life FOR MY ENTIRE LIFE. I want it to stop, to go away, to be cured so that I can do normal adult things, like make friends, have a job, pay my rent, afford to eat, and other things that most normal people take for granted. My therapist is bent on looking at me changing my attitude about it all. The problem over my 53 years has not been MY attitude, but rather the attitude of others. I told him how I get treated like a freak, and how I use that word because this was a word that a few people used to describe me. His response is to wonder why I think of myself that way. Again, he is NOT LISTENING! The issue is NOT that I think of myself that way. It's the attitude of others, of society. It can be seen in YouTube comments about Autistic screeching and REEEEEEEEE. It can be seen in how they speak of Autism as if it's mental retardation, when it is not. It doesn't matter that they're wrong. What matters is that they get to decide whether or not I get to eat tomorrow, or whether or not I'll fit in. At the last therapy session, the therapist says, Fitting in is great, and makes life so much easier, don't you agree? Yea, no shit, Sherlock. Does he think that I am CHOOSING to not fit in? If he is suggesting that I've never even tried, then he is wrong. Getting a diagnosis of Asperger's is like getting a diagnosis of cancer and then being told that it cannot be cured and you'll just have to live with it. It's worthless. Pointless. Frustrating. I'd almost rather want to go back to the mysterious days, when I thought that I was the big problem. Now I know that it's the rest of the world that is my big problem, and I cannot change the world. I cannot educate others in a way that will help me.
Jeff riley 1 month ago
Lol guy I went my whole life similar story I just ranted this.Autism is not an excuse or give me a right to be an asshole. Autistics are victims of circumstances. Neurotypical people live in a bliss of understanding others,  forming and understanding friendship, love etc. you have no clue what being a even child or an adult that NEVER gets included in people for ASD. I am 36 years old never had a really   serious relationship (6 months)? I feel a fucking failure throughout life I can't even go to Christmas or nothanksgiving because of this and MY complications make ME angry sorry bro but unless you really do something wrong. I ain't going for your jaw, really I get along great with most 'kinda'.but  I'm a high functioning  so I have  made according to family shitty by comparison life accomplishments.nonetheless  I am pretty damn proud I've came this far.  So no NOT an excuse to asshole. just a pretty understandable assumption a guy turns out pissed off.
XIV Words 3 months ago
Message me. I'm 44 and just self diagnosed myself
JAMQWERT 5 months ago
Keep in mind if you are a temp visa holder and not a citizen, and get diagnosed autistic, you can have your visa cancelled because you are considered a burden on the system. (Even if you never use the system). This will also be an issue if you want to apply for a permanent visa in another country. Autism (Even high functioning) is considered a disability in many countries including Australia and they will deny you a visa to live there (you can still travel of course, just not reside). So that is something to consider as well, before getting an official diagnosis (you must disclose). It's funny because you are the exact same person, it's just you have a label attached which makes you either worthwhile or worthless in the eyes of immigration. I would think more aspies would be beneficial to a country, given their aptitude for technical problem-solving and outside-of-the-box thinking. In the words of Ned Kelly Such is life
Iahel Cathartes Aura 20 days ago
Thank you for this!!! Yeah this is beyond stupid & messed up. and I never would have suspected this to be the case in some countries! Your info will save many of us from lots of pain & turmoil.
Elizabeth Glemsford 5 months ago
My sister was diagnosed last week. She's 59 and has known she was different all her life. The diagnosis was a relief and also a sadness, but together we are moving forward and she's the happiest I've seen her in years. It's a scandal that it cost her almost £2000 to get the assessment and a diagnosis, though.
JG Alegria 3 months ago
wow. I'm nearly 50. in a few weeks, but i'm not that keen on going down the mental health road. in fact i don't like appointments much and wouldn't know who to see or how to afford it. I'd only want to go to someone who really knew Autism and who had experience with women on the spectrum and not just mathematicians or tech/engineering type people. listening to people's own expressions is a great comfort and reassurance. I'm not sure I can trust the diagnostic criteria as they are based on males. I'm not into maths or numbers in a big way at all. when i do a test type of thing it looks like i'm just on the spectrum, but when i think about it according to what criteria is out there i see myself more as 50/50 Aspie, but the Aspie bits are not moderate eg: how much time i spend alone. plus high sensitive, plus introvert, plus ADD/possible ADHD and maybe a little OCD when stressed
Aspergers from the Inside 5 months ago
it can cost a lot, but hopefully it's worth it in the end :)
C Bee 5 months ago
Unexpected result of diagnosis: travel insurance - you're supposed to tell them, and my insurers then ask (as standard) if the autistic person will always be accompanied by someone who knows them well. Meaning, no travel alone!
JG Alegria 3 months ago
wow what!
Second 6 months ago
OMG, I thought a diagnose only consists of one 1-hour session, or maybe at most 2 hours - filling questionnaires, talking to the psychologist. Just for one diagnose, you need to go to several, even more than 10 sessions?? OMG, wtf! And I know, even researches in brain, psychology, and psychiatric are INCOMPLETE. (especially psychiatric, beware of the medications - it's not an actual cure (in some cases, the medication IS THE CAUSE of depression, anxiety, or suicidal thoughts) - more like they are either gathering data, or money)
Julie Tait 3 months ago
I'm in UK and undergoing assessment. Had 3 sessions so far, 1-2 hours each. Got letter saying I have to go to another soon. Been given no indication how long this is going to go on for, which is exasperating.
Chanel Mone 3 months ago
Where are you ? Maybe it depends on where you are in how long it takes. To get diagnosed by Developmental pediatrician it’s 4 doctor visits
Ashley Latson 4 months ago
My assessment was only 2 hours and done over the course of 2 visits.
Nat Tr 5 months ago
Second I have been seeing my psychologist for nearly a year and he has just told me he is positive that I have Aspergers.so.yeah. But then again I didn’t go to him because I thought I was on the spectrum, I didn’t suspect it at all. Maybe that makes the difference.
Catharina von Liel 6 months ago
YAY for the German health system. I'm in the middle of diagnostics, and I don't have to pay a single penny for it. Not for psychotherapy either. On the down side, we do pay a lot of taxes, but that's OK with me, all things considered. I'm 34, female and self-diagnosed Aspie. I'm looking for closure (I was an outsider during my school years) and for coping mechanisms / help with comorbidities (depression, mental exhaustion, severe problems with sleeping). Also, YES to the acceptance aspect. Nobody believes me, except those who know me VERY VERY well.
Lliryht 2 months ago
just one little question: where do you go when you want to get a diagnosis? So I am living in Germany, too. But I have absolutely no idea who to turn to when it comes to a topic like: Am I autistic? I can't talk to my parents about it and I am feeling very uncomfortable talking to my doctor about this. But I've always felt different and since I was little I was the one being bullied by others for strange behavior and I also had a lot of meltdowns and problems getting and keeping friends. Do I have to make an appointment with a therapist? A doctor? I just don't know where to turn to and it's really frustrating because with me being 22 years old, I just really wanna know what's wrong with me and if there is a cause for my problems with social interaction and the impact it has on my mental health. I took the online test for self-diagnosing on a german autism website and I always score above 36, which is, when it comes to my friends, not that unexpected. Would be interesting to know for me, where and who you've been gone to get a diagnosis. Thanks a lot :)
JG Alegria 3 months ago
well i think my sister and my mum and my daughter would just go yep well that explains a lot. :D haha. okay well i have to laugh at myself. the other week i said something to my sister about being a little bit different or unusual and her face and body made this kind of exaggerated reaction. i thought okay well I'm not THAT unusual thanks. it's just that she's super duper normal
Onewaverider 6 months ago
Could you make the chart that is behind you available as a pdf? Or put it on screen by itself so people could focus on the chart for a bit?
EC A 6 months ago
Thank you, thank you, thank you for plainly mentioning the lack of professional knowledge when diagnosing ADULT FEMALES. 🙏🏽 That alone gives me some significant satisfaction within myself that I've not had but within the community. I've not sought a diagnosis for ASD because of that, because I could imagine the emotional harm of being set back inside myself even more, being alone in this world of my mind further and the second guessing that automatically goes along with it. It can be frighteningly lonely and emotionally depleting and has been to a good degree having even someone closest to me not see it , which to me meant, I was merely seen as eccentric, overly passionate, lazy and, of course, weird. It's as though ppl are waiting for a certain performance they've concocted in their non professional minds that I'm not displaying for them and therefore I just added hypochonfria and possibly attention seeking or abelism to that list. If a professional were to deny the diagnosis, that would give the whole world of judgments in my mind all the merit and that would shake me to my core. However, I will still seek one. Meticulously, slew of signed diagnoses in hand (that literally create the full umbrella for a decently typical female adult autistic mind) searching for a professional on the pulse of adult female autism. Feeling this to my core with very straight forward information I cannot see anything less than a solid diagnosis. 🤞🏽*Touch wood*
sky blue 6 months ago
Very much appreciate your work.……..I am a senior in the US.………..you ROCK! xxx
Tom O 6 months ago
I was diagnosed at 35. I think it was good, so that I finally knew why I felt different
Tom O 4 months ago
Daring Greatly84 It's been about 2 years since an official diagnosis. There have been some real bad days when I knew for sure that I was different than the kids I grew up with. I wish I was diagnosed when I was younger, so I could have had more therapy about social skills and understanding sarcasm. I've lost a lot of friends and I know it's because of the Autsim, but I still don't know exactly what I did wrong. Almost all of the medicines for depression and OCD have never worked for me. But, I would say to get a diagnosis, it will help getting services that you might not have had before. Hope this helped. Any other questions you have I'll try and answer. I'm a lot better at communicating by writing since I can look it over and think about my answers than in person in case someone asks something I'm not ready for. I definitely don't have as many meltdowns as I did when I was a teenager because I know what I was feeling was because of Autsim.
Daring Greatly84 4 months ago
Tom O has there been anything negative that came from an official diagnoses? Just wondering. Thx.
soyviboe 7 months ago
I'm a 40 year-old woman, second language teacher and literature researcher. I had some difficulties to start working when i was young, but nowadays it's wonderful the way i feel i offer the students new ways to think and learn language (i have ideal conditions, not more than 15 students for class, adult students, not noisy place, and i can control all the things in the environment of the classroom, as lights, sounds, if i need it). I really would like to get a official diagnosis in the next years. I've known about Asperger this year, when i was searching some ways to help some of my students. But It was a great surprise. It was absolutely chocking for me something which could explain my behavior, my difficulties, my sensibility for light, sounds, colors, smells, and overcrowded places. It was very important to realize i was not simply weird , (as somme people always told me), but only different, i have a different system, i maybe feel the world in a different way. I felt i was not alone, there were others like me. But i think a diagnosis in my case could not help in work, because there is a lot of prejudice involving autism and Asperger, people really don't know these conditions, and some directors or coordinators could simply not employ a teacher with this label , because of other false labels this could come together. I would not open this in work places. But i really would like to get the official diagnosis, for me, for my family, mainly to understand family's and friendship's issues. (sorry for my english, it is not my best foreign language). Thank you for this video!
soyviboe 3 months ago
@Daring Greatly84 I've had a lot of short time contracts and temporary jobs, since i was 25. i was not always happy and i've abandoned things sometimes, and i was many times felling misunderstood, mainly when i needed to do political and social negociation. I think i was depressed for many times and I've been unemployed many times too, sometimes both together (i had no psychologic support, neither knew about asperger, it would help me a lot, i'm sure). After my 35 i think things started to flow, very slowly but better. As i followed an academic carreer it helped me, because i've had many choices., i've tryed different field inside my language and litterature mainly field, edition, translation, teaching literature, researching, teaching language. there were moments when some of them were my special interest, other i hated. i think everything would be better if i knew a.s. before. My place i've found very recently, less than 2 year ago, through some real friends network.so i had an intervew and i think i was really me, correct, methodical, but soft, i asked things and small details of the job, the boss liked my answers too and nowadays she likes my work. I feel very happy with what i do, but i know it's only the beginning and i have to be always renewing my points me to be interested. I suggest people always follow something that makes them curious. I realy think aspies can be excellent teachers of the interest they love and know very well, if they can find their very interested students, and the boss who can see the potencial.
Daring Greatly84 4 months ago
soyviboe what age did you start working and how were you able to to find your place and overcome the struggles that stopped you?
Carol Jenkins 7 months ago
I had no idea what autism was when diagnosed aged 31. I needed a diagnosis to claim welfare. The downside is that the diagnosis was used by social workers & my own mother to try to take away my parental rights/custody of my child. My diagnosis was exploited by professionals who had never even met me. My autism symptoms were even portrayed as schizoid personality disorder, by a very desperate psychiatrist. Although they did not win, they did a lot of unjust slandering of my character. They did not get away with this before. In fact a previous attempt before my diagnosis ended up with them having to open a 5 year investigation. Where they removed data, apologized & awarded me compensation. Just having the diagnosis changed everything. It was like a green card for them to fabricate whatever they wanted on a mass scale. And it resulted in any future complaint I made automatically being assumed my fault. All complaint processes I requested were prevented from being started.
Amie Joy 5 months ago
What country are you in Carol? Thats an awful thing to happen.
ShinySilverBunny 5 months ago
Thank you for sharing your story. That makes me apprehensive of seeking a diagnosis just because how the system is.
TRS Cubes 5 months ago
Carol Jenkins WOW that's absolutely terrible! I'm glad they didn't win. I'd rip off someone's head if that happened to me. I hope they didn't successfully take your children.
John Lee 7 months ago
This is exactly what I have been debating. I am a senior adult male and retired. I worked for a government agency and had jobs where I could work pretty much the w't'gay I wanted to. I put a lot of energy in the work and got rewarded for it. I have all the symptoms of the syndrome but I tend to hind them when in front of people. Therefore I have this urge when around people to get away by myself so that I can act out some of the symptoms. If I don't get away, I become very angry and will pick a fuss just to end the contacts. Back to this point which I digressed from which shows one of the systems. LOL But I don't actually need a diagnosis for work reasons. But sometimes think it would be good to pull out a document and show those that have doubts. It might help if you have trouble with the law or those in authority where you exhibited the behaviours and was misunderstood. I have no idea where to even start if I decided to do that. Also, for mental evaluations by professionals, does the information have to be reported to others. Is it on file somewhere. I would like to have the choice to divulge it or not. I don't have any personal reason to have it. I know I have had it since birth and have kept it quite all this time.
Virginia Moss 6 months ago
Similar circumstances as me, now a 69-year-old woman. As I learned about Asperger's Syndrome, I knew my brother and my father had the syndrome. They were the reason I was interested. I couldn't quite tell if I had Asperger's according to the symptoms lists I came across, but I was curious. By age 65 I was having memory and thinking problems, fearing I would follow in my father's Alzheimer's footsteps. My neurologist referred me to the psychology department of a nearby university for testing, two full days of very thorough testing. It turned out to be an IQ test which disappointed me; I wanted to know what was wrong, not how smart I was. However, I was shocked at the high scores; I always thought I was just average or below. Goes back to being female during a time before the advent of women's rights and respect as well as knowing I was somehow different from others. I pursued a formal diagnosis for several reasons. The first was that it would offer a label/explanation for my brother, his son and my father that they would not have to pay for; they are all more severe than me. Second, I gratefully had Medicare after 4 decades of paying for ever more expensive individual health policies coupled with a supplemental policy that paid for everything Medicare didn't; basically free health care. So it cost me almost nothing. Third, it would not affect my business/livelihood; my many long-time clients wouldn't care. Fourth, looking at growing elderly, I wanted caregivers to understand that I was different and how different so that maybe I'd be treated more appropriately. Even all of the medical community needs to know how I am different. I sought a diagnosis from a neuropsychologist in town who mostly assessed children for school reasons. It was just a few computerized tests one day in conjunction with the university's report. He said he was convinced I had very high-functioning Asperger's Syndrome; I still wonder. Though he didn't test for ADHD, he said I probably had that, too (my daughter and grandson do). I know I also have face blindness (prosopagnosia) and a photographic memory. The former exacerbated socializing beyond the usual Asperger's difficulties; the latter allowed me to excel in my work to have a solid career. I guess my high IQ allowed me to observe and imitate normal people long and accurately enough to get through meetings and brief encounters, ready to offer gracious excuses for any oddness they might perceive (extremely exhausting!). The rest of the time I was happiest to be alone. Luckily, for whatever reason, I have never felt lonely; it seems an awful thing that makes people make poor decisions sometimes. I'm glad it's missing in me.
hildir2 6 months ago
John Lee hi I'm senior woman with similar circumstances I don't see a benefit for official diagnosis at this point
joel sach 8 months ago
males are a burden. females get paid for. men commit suicide. females get married. men get rejected. females get support. The stats prove it.
Vicky Manson 8 months ago
I will definitely be seeking an official diagnosis because I was diagnosed with borderline, PTSD, and anxiety, but I knew all along there was more going inside of me. I've always felt like an actress and was observing people and mimicking them. And it was very tiring. It explains so much about how I see/feel the world around me and why 'normal' life is so difficult (working, having friends, dating, intimacy, traveling, having hobbies etc) Instead of being filled with all kinds of meds, I might finally be referred to the right kind of therapy and make something of my life, instead of living like a zombie.
Peta Pan 88 13 days ago
I know what you mean about misdiagnosis and the zombie thing. I was put on so many anti depressants for years, they just made me worse/feel dead inside. Only got better when I got them out of my system and started trying to work with my brain instead of against it.
Iahel Cathartes Aura 20 days ago
I relate. Thank you for sharing your journey. It's very helpful to me. I am helped very hugely by Palmetto Harmony CBD oil, when I can afford it.
abc xyz 1 month ago
@Vicky Manson And how was your diagnosis? I have CPTSD too and i suspect autism aswell but i cant distinguish CPTSD from autism. How do you distinguish CPTSD from autism?
Ashley Latson 4 months ago
+amar sai I do the same exact thing. I play my role to a T in hopes that I'll blend in and people won't seek me out.
Em S 4 months ago
Me too with cptsd and borderline
Gary G 8 months ago
Thanks. I enjoy your videos and listening to you speak.
Brett Bensley 8 months ago
although I met the requirements of aspergers (only except for the fact I am married), I have a diagnosis of PLI. My statement, for me, I sought a diagnosis, and I paid for help and training. and non of it was helpful in any way and in fact caused me trouble. My employer (the very university that I got the diagnosis at) used my diagnosis against me (and it was illegal and I was covered under the American's with disabilities Act.and the FEDS did nothing in a reasonable time frame). So from my experience.not worth it, though it could be to others.
Seán O'Brien 3 months ago
boooo!
JG Alegria 3 months ago
what is PLI?
thgreatandini 5 months ago
Max Stafford you’re right, but psychology professionals use it as a sign of not being impaired. That’s what I was told for my personal situation. I agree it’s a complete misconception.
Brett Bensley 5 months ago
yep, same for me (personal info, history, routine, bad sides and more).
Brett Bensley 5 months ago
Max Stafford, I agree, but that was in my diagnosis as to why Asperger's WAS NOT chosen!! And don't call me moron as my IQ is over 130!!! you moron!
Cat Whisperer 8 months ago
Thank you for this video. I have self diagnosed at age 53. As a child, I was sent to speech therapists with no answers. I struggled throughout my life, socially. Unexplained confusion and anxiety. I was actually researching ADHD, as my husband was diagnosed with that years earlier. As I explored related disorders, I was noticing aspergers traits and relating to a tee. My husband recognized it instantly. Explains so much of my limitations, characteristics and experience. I am not interested in official diagnosis. I am retired now and have managed to make it this far. Self awareness and self improvement or growth are essential in life no matter what we face. I do not like labels so much, as I think sometimes one can be encumbered by it and use it for an excuse instead of a tool to grow and succeed. Also, I do not care for the negative stigma that ignorant people attach to you. Thanks again for your time in helping others.
Sicksongwriters lyrics 8 months ago
Hi. New subscriber here. My boyfriend has Aspergers. The first year was the hardest because I just didn't get him. His obession with routine, eats the same thing at the same time every day. Alot of meltdowns because of simple things. Picked me to pieces about not turning off the ceiling fan, not rolling the seat belt up after unbuckling, forgetting a receipt from the store etc. I almost left him but the good times were really good and he wasn't intentially cruel. He was very apologetic. I didn't know what was wrong with him until I researched obsessive routines and Asperger's came up. Everything fit. Now, 4 years later, we continue to work things out as problems arise because he is a good man. He is not diagnosed because it doesn't fit into his routine.
Aspergers from the Inside 8 months ago
good to hear! sounds like you're understanding each other better :)
Bethechange 9 months ago
Great video. I am self identified. I would like to get an ‘official’ diagnosis at some point. I agree about the cost. I feel that The cost is quite prohibitive for many of us who have arrived into adulthood under employed, or unemployed, due to our difficulties negotiating the workplace and most likely not fulfilling our potential, post education. If and when we get the money together (perhaps after years of saving small amounts) there is the fear of mis diagnosis. So like you said it’s important to find the right person, especially familiar with ‘masking’ techniques of adults on the spectrum getting by in life by imitation.
JG Alegria 3 months ago
under employed by choice and even then it's often exhausting just dealing with all the stressors and navigating everything in the day. under educated not by choice. have tried to get a degree a couple of times bzzt
gabrielernesto66 6 months ago
Bethechange I found out like 4 days, I’ve been reading about aspergers specifically, and I fit so much on it. my own family members were shocked on how obvious it is once we had the info. diagnosis are pricey, but I feel better know that I can tap on what it is, before I felt lost and thought I was just an ass and insensible or immature in certain areas, the past four days had been tough, but I’m getting there
Cat Whisperer 8 months ago
Getting by with imitation. Isn't that amazing when you actually discover that you have been doing that your whole life? I would examine other women and mimic hairstyles, fashions, makeup, etc. Small talk became an art form. I worked for many years as a school bus driver, transporting handicapped kids. I was petrified of our bus to bus radio. I was fine with talking to dispatcher about job info, but when a coworker came on and would make humorous comments and would expect a reponse, I would be frozen in fear of how to reply with dozens listening over the airwaves. I tried so hard to blend in and not be noticed. So much anxiety trying to stay hidden and normal and not understanding why. Just a vague feeling of being different from everyone.
Alex Dorman 9 months ago
Been thinking about this. Thank you :)
jenlovesthisstuff 9 months ago
Thanks so much for all the time and effort you put into all your videos, Paul. Lots of people say they don't like labels, however I feel they help you to understand and know yourself better plus predict future issues ahead of time. I'm an INTJ and self diagnosed Aspie and yeah I've been agonising over the decision in regards to a formal diagnosis. I'm afraid I could lose my career as a result. Oh and I had a pretty volatile bullying incident at work last week that took me totally off guard and caused me great anxiety. I'd left a comment on your bullying video about how I aim to pre empt other people's behaviour so I can deal with them effectively and not let nasty, aggressive people walk all over me but this time it didn't make any difference and I just wanted you to know that because I may have come across as arrogant. ✌💜
Aspergers from the Inside 9 months ago
No worries. Glad you appreciate it :)
Courageous Commenter 9 months ago
Excellently explained as always.
Aspergers from the Inside 9 months ago
Thanks :)
Gina's Totally Bodacious Universe 9 months ago
Thank you. It is a very well balanced chart that helps put the pros and cons into perspective.
Aspergers from the Inside 9 months ago
You're welcome. Glad you like it :)
Madd Scientist 9 months ago
IMHO: As an adult (over age 21yrs.) and you have difficulty in keeping a job, you may want to secure a diagnosis. It could be helpful. Once you have that you may/or may not tell your employer.
Jessica Kennedy 4 months ago
Thanks. My mom tried to get my sister and I into a private school but they wouldnt take me because of my disabilities even though they have services for it. They would only take kids with a high GPA and who didnt need any special attention. My mom looked into it before even trying and they have services available for people with disabilities they are just prejudice and petty. We opted not to go there. I found that a school in the next town over actually helps the kids and has good services but only after I graduated. I met some other people with autism who went there and had a good experience. They take bullying very seriously as well where as the school I went to didnt care until there was a physical fight. My aunt was trying to get my cousin in there but his GPA wasnt high enough to transfer and since it's out of their district the school was allowed to be picky. They wouldnt have let me in either because I didnt raise my GPA until my senior year.
Virginia Moss 4 months ago
I have heard that public schools have little to offer for learning disabilities. We were told to not even try, so his parents opted for private prep-school; the kid is very bright, just has this problem. They live in near poverty to pay for it but he gets really good attention and help there. All the grandparents help out as they can. Who would pass up free tuition at a community college?! Seems like you made the best choice under the circumstances. All you can do is keep trying, keep battling, keep figuring everything out. Never give up!
Jessica Kennedy 4 months ago
+Virginia Moss it was my local community college. everyone in the state gets to go there for free right out of high school. They pay for everyone and I wasnt ready to move away from home which was my only other option as this area doesnt have much. Theres a catholic private college or a commute of 1 to 2 hours to the closest university and thats it other than the community college. My IEP didnt even help me as my school never followed it and shamed me when I spoke up for myself. The schools here arent that great when it comes to people with disabilities. Great for sports and teaching kids how to take tests and how to bully other kids but not so great when it came to those that needed extra help. They only took kids with disabilities because they get extra funding for them but they dont use it for that.
Virginia Moss 4 months ago
Jessica Kennedy - So unfair! My grandson has ADHD but he goes to a school that has an IEP for all students, regardless of any learning problems. I hope that doesn't mark him as you have been marked. So wrong! Maybe you should have been paying tuition to a better college.
Jessica Kennedy 4 months ago
I was going to college and applied for work study. the college knew about my impairments through my high school. They refused to hire me claiming I didnt have enough experience when the point of the work study was to gain experience. They lied so that they didnt have to hire me. They hired someone much less qualified who had never had a job before. I had had a job in high school briefly. It didnt last long because they wouldnt let me take time off when I was in the hospital but the point was I had had a job. I had also done a work study thing for people with disabilities to teach me how to do different jobs. I didnt tell my employers about my diagnosis though. It wasnt a problem until college when they had knowledge of the fact I had an IEP. That cause them not to employ me.
Grumpy in Brooklyn 9 months ago
Outstanding!
Aspergers from the Inside 9 months ago
Thanks! Glad you liked it! :)
RedRock Asrama 9 months ago
Very well put together.
Aspergers from the Inside 9 months ago
Thanks :)